2nd Week at Home

We'll its been a while since we've posted. We're trying to get used to the new routine... a new normal. Lion is doing so well. Hes down to about 14 meds and only 22 doses instead of the 18 meds and 30 doses!! So he gets meds at 8am, 10am, 4pm, and 8pm. Thats a breeze compared to the round the clock every 3 hour schedule we were on pre-transplant!! He has a great group of helpers that come to visit and work with him from PT and OT. They work on movement and stretching, and he seems to enjoy it. We have follow up appointments up in Salt Lake twice a week to check his anti rejection medication levels in his blood, and then adjust according to how things are looking to the doctors. Landen's brother and sisters are also so happy to have him home and smuther him with Loves all the time! We got to go up to the hospital on Saturday night and help with KSL's Telethon for Primary Children's hospital and that was a lot of fun. Tomorrow Brayden Madisen and Koelle get to go to a "Heart Camp" Its a special camp just for kids with heart problems and for their siblings. Going to be great fun for them. We feel so blessed to have Landen home and for all the love and support of our families, friends, and even people we dont know who have helped out in some way. Thank you all!!

ksl.com - Lehi infant receives hospital's first incompatible heart transplant

ksl.com - Lehi infant receives hospital's first incompatible heart transplant

Our Little Smiley Boy

Landen is doing so well today. He is giving us the BIGGEST smiles I have ever seen. He is just doing so well, we are so grateful.

Another Visit with Lion

The kids could not wait to see their little brother again. He is doing so well, he should be coming home in a couple of days. We are all so excited. We will be bringing our little boy home and this time he is staying home! Landen-beware you will be smothered by your siblings, but who would blame them...you are so cute, I mean handsome.

Lion's TV Debut

Channel 5 in Utah called the hospital because they had heard that there was a new type of heart transplant done here at Primary's that has not been done here before and wanted to do a news clip about it (thanks Darren for letter the news know about our little lion). So, on Friday the news reporter and his camera man came to tape Landen and also interview us and his doctor. It was fun to tell everyone how strong our little lion is and about the wonderful gift we were given two weeks ago. The news clip will air on Tuesday on KSL, channel 5. We will let you know of the time when we hear.

Visiting Lion

Since Landen is looking so well and nobody has a cough anymore, the kids were able to come and visit him at the hospital. It had almost been two weeks since the kids had seen there little brother and they had not seen him since he had received his new heart. We had them were masks, which KoKo did not enjoy, but they did love seeing there brother. KoKo has been walking around saying "Lando" and "Baby." We are so glad that our little baby is doing so well.

LION FEEDING

So yesterday and today they let Lion take a little feeding by mouth. It's gonna take a little while to get him back to where he needs to be, but at least he's started! He seems to be in a little better place with his meds and feeding so we're looking forward towards getting him home next week!