Wednesday, June 9, 2010

2nd Week at Home

We'll its been a while since we've posted. We're trying to get used to the new routine... a new normal. Lion is doing so well. Hes down to about 14 meds and only 22 doses instead of the 18 meds and 30 doses!! So he gets meds at 8am, 10am, 4pm, and 8pm. Thats a breeze compared to the round the clock every 3 hour schedule we were on pre-transplant!! He has a great group of helpers that come to visit and work with him from PT and OT. They work on movement and stretching, and he seems to enjoy it. We have follow up appointments up in Salt Lake twice a week to check his anti rejection medication levels in his blood, and then adjust according to how things are looking to the doctors. Landen's brother and sisters are also so happy to have him home and smuther him with Loves all the time! We got to go up to the hospital on Saturday night and help with KSL's Telethon for Primary Children's hospital and that was a lot of fun. Tomorrow Brayden Madisen and Koelle get to go to a "Heart Camp" Its a special camp just for kids with heart problems and for their siblings. Going to be great fun for them. We feel so blessed to have Landen home and for all the love and support of our families, friends, and even people we dont know who have helped out in some way. Thank you all!!