Tuesday, November 16, 2010
I was just reading my friend Chrissy's blog. Chrissy and I met at the hospital months ago at transplant clinic. It turns out that her little boy who is KoKo's age got his transplant just 2 weeks after us. She has been an amazing friend and support for me. Anyhow, I was reading her blog and I realized what a bad job I do on keeping up with our blog. Landen is doing very well. I actually feel like today might be a turning point. This is the first day since transplant, over 6 months ago, that Landen did not throw up. Whatever the reason, I hope it continues to work. Again, he is doing very well and we are so happy. I think with transplant the worry will never end, but if we remember the good days and the little accomplishments we can get through it. I don't know if I have mentioned this, but I can upon this song and the words mean more to me than they ever have before. It says "I believe in Christ, so come what may." We never know what life is going to bring us or why, but it will all work out in the end. Thanks for all your support and prayers; we couldn't have made it without them.
Monday, November 1, 2010
While Landen was in the NICU before we knew anything about a transplant, I decided I wanted to make a quilt and have the doctors, nurses, etc. sign it. It would a quilt to remember all the people that helped save our son's life. Well, when I first was planning this quilt I thought it would be a baby size quilt, but the quilt seem to grow and grow. I think I drove people nuts with my bag of quilting squares, but this quilt turned out amazing. I love reading each square and thinking about each person that contributed so much to save our child's life. We have had the most amazing doctors, nurses, and other hospital staff. All of which contributed in saving our son's life. THANK YOU!!!!
Last week we received another great gift. We received a beautiful letter from the most wonderful family-Landen's donor family. "Donor Family" is what they are called at this time, but they are more than that. They are the family that gave my son life. We know that without a doubt that this was Landen's heart. It was scary to accept it, but we knew that it was our only chance. And for some reason, this was Landen's perfect heart. This family had the most difficult decision ever to make and in a horrible circumstance, but we thank them each night for their gift. And asked that they are somehow comforted. The letter explained that the little lamb they sent was in the crib with their baby until they took her to surgery. That make that gift even more special to us. We were even able to see a picture with the little angle holding the lamb.